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Stephen Heywood was twenty-nine years old when he learned that he was dying of ALS -- Lou Gehrig's disease. Almost overnight his older brother, Jamie, turned himself into a genetic engineer in a quixotic race to cure the incurable. His Brother's Keeper is a powerful account of their story, as they travel together to the edge of medicine.The book brings home for all of us the hopes and fears of the new biology. In this dramatic and suspenseful narrative, Jonathan Weiner gives us a remarkable portrait of science and medicine today. We learn about gene therapy, stem cells, brain vaccines, and other novel treatments for such nerve-death diseases as ALS, Alzheimer's, and Parkinson's -- diseases that afflict millions, and touch the lives of many more."The Heywoods' story taught me many things about the nature of healing in the new millennium," Weiner writes. "They also taught me about what has not changed since the time of the ancients and may never change as long as there are human beings -- about what Lucretius calls 'the ever-living wound of love.'" This P.S. edition features an extra 16 pages of insights into the book, including author interviews, recommended reading, and more.
How does a family navigate the intersection of terminal illness and the rapid, often experimental, advancements of modern genetic research? Jonathan Weiner, a Pulitzer Prize-winning science writer, documents the Heywood family's response to Stephen Heywood's diagnosis of ALS. By chronicling Jamie Heywood's transition from a non-scientist to a self-taught genetic researcher, Weiner examines the ethical, emotional, and practical boundaries of medical innovation in the face of a degenerative disease.
What You Will Find
Scope Limits
Experts and readers alike recognize this work as a significant contribution to the literature on patient advocacy and the ethics of experimental medicine. The narrative is frequently cited for its ability to balance complex scientific explanations with the intimate, human reality of living with a terminal diagnosis.
Page Count:
384
Publication Date:
2005-06-14
Publisher:
Ecco
ISBN-10:
0060010088
ISBN-13:
9780060010089
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