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Most chronically and terminally ill patients are cared for in their own homes and represent a major yet free resource. These patients are not in hospitals or hospices and their day-to-day care is provided by family and friends at home. Carers are an invaluable resource and there is an increasing amount of research into their role and the experiences in caring for the terminally ill, patients with cancer and patients with other chronic diseases.This book provides a critique of the theoretical concept of caring, carers and caregivers. Material is based on empirical evidence from recent studies with adults with acquired chronic illnesses, including terminal illness. The empirical data within the book has been gathered from the perspective of those providing personal, domestic or emotional care to others already known to them by virtue of kinship, co-habitation or friendship, rather than carers organized on a professional or voluntary basis.
This book investigates the complex social and theoretical dimensions of informal caregiving for individuals suffering from chronic and terminal illnesses. Authors Caroline Ellis-Hill and Sheila Payne utilize empirical data to challenge existing frameworks surrounding the role of family and friends as primary caregivers. By shifting the focus from professional medical environments to the domestic sphere, the authors argue for a more nuanced understanding of the emotional and physical labor performed by non-professional carers.
What You Will Find
Scope Limits
Experts in the field of palliative care and medical sociology identify this work as a significant contribution to the study of informal care networks. Readers frequently note the academic density of the prose, which serves as a rigorous resource for researchers and practitioners examining the realities of home-based patient support.
Page Count:
184
Publication Date:
2001-07-05
Publisher:
Oxford University Press
ISBN-10:
0192631675
ISBN-13:
9780192631671
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