In Our Words: Personal Accounts of Living with Non-Epileptic Seizures
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Author Description
Psychogenic Non-Epileptic Seizures (PNES) can cause blackouts, collapses, involuntary movements, loss of memory and have major impact on quality of life. Whereas epilepsy is caused by abnormal electrical activity in the brain, PNES are psychological-based responses to triggers inside or outside the body that are perceived as threatening by the person affected.PNES are poorly understood by the medical community. It is common for doctors to struggle to explain this diagnosis, which can leave their patients frustrated and confused. Often people are told that their PNES are caused by "stress" and sent away with no further support or advice. It is no wonder that those affected feel isolated, abandoned and hopeless about living with the condition.In Our Words: Personal Accounts of Living with Non-Epileptic Seizures shows those diagnosed with PNES that they are not alone, and how others have courageously managed to come to terms with their seizures. These heartfelt personal accounts will also allow family, friends, healthcare providers and researchers to gain more understanding of the condition and work to provide a better quality of life to those living with PNES.
Menrva's Summary
THE THESIS
This book investigates the lived experience of individuals diagnosed with Psychogenic Non-Epileptic Seizures (PNES) to bridge the gap between clinical diagnosis and patient reality. The authors, including medical professionals and patient advocates, present a collection of personal accounts to address the isolation and confusion often associated with this condition. By documenting these individual stories, the text argues for a more comprehensive understanding of PNES that moves beyond simple stress-based explanations to improve patient support and quality of life.
THE SCOPE MAP
What You Will Find
- A collection of first-person narratives from individuals living with PNES.
- Contextual explanations regarding the physiological and psychological triggers of the condition.
- Insights into the challenges of navigating the medical system with a frequently misunderstood diagnosis.
Scope Limits
- The book does not provide a clinical treatment manual or a medical guide for self-diagnosis.
- It does not cover the full spectrum of neurological seizure disorders beyond the specific focus on PNES.
THE AUTHORITY PERSPECTIVE
Healthcare providers and patients frequently cite this work as a vital resource for validating the experiences of those with PNES. Experts highlight the book as a necessary bridge between clinical literature and the human reality of living with a stigmatized condition.
Page Count:
294
Publication Date:
2018-01-01
Publisher:
Oxford University Press
ISBN-10:
0190622792
ISBN-13:
9780190622794
Health
Psychology
Non-Fiction
Neurology
Medical
Mental Health
Allied Health