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Living with haemophilia has established itself as the complete guide to haemophilia and related disorders. Written primarily for affected families, the book also provides a useful and up-to-date guide for doctors, paramedical staff, including nurses and physiotherapists, and teachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. Other coverage includes · Sex and family planning · Childhood with haemophilia · Education and employment · Sports and travel · Previous side effects of treatment including HIV and AIDS Sensitively and clearly written at an appropriate level for those with haemophilia, their families and friends. This book aims to dispel the myths and raise awareness of the realities of haemophilia. It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life. He addresses all the questions that those with haemophilia or those caring for them need to know the answers to, with humour and genuine concern. He has worked with those affected by it for over 30 years and this book contains his wealth of experience. "All of those who come into contact with haemophilia should read this book" Journal of the Royal College of Physicians Features include · Bullet pointed lists of dos and don'ts for those caring for haemophilic children · Boxes containing key information · Clear simple drawings showing treatments and exercises
This book investigates the practical, medical, and social challenges of managing haemophilia to provide a comprehensive framework for healthy living. Author Peter J. A. Jones, drawing on over three decades of clinical experience, synthesizes medical data with lifestyle guidance to support patients, families, and healthcare professionals. The text argues that informed care and proactive management allow individuals with haemophilia to maintain active and productive lives.
What You Will Find
Scope Limits
Medical professionals and patient advocacy groups frequently cite this work as a foundational resource for its accessible, empathetic, and thorough approach to a complex condition. Experts highlight the book's utility in bridging the gap between clinical requirements and the daily realities faced by affected families.
Page Count:
346
Publication Date:
2002-01-01
Publisher:
OUP Oxford
ISBN-10:
019101561X
ISBN-13:
9780191015618
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