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Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multi-disciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.
This book investigates the complex ethical, legal, and scientific considerations surrounding the use of children as research subjects. It addresses fundamental questions about the justification, limits, and implications of such research, drawing on the unique differences between children and adults. The work examines historical instances of both use and abuse, and explores parental authority and children's participation in decision-making processes. It critically analyzes the assessment and balancing of research risks, aiming to navigate the inherent tension between advancing knowledge and protecting vulnerable populations from exploitation and harm.
As the first book dedicated solely to the science, ethics, and law of research with children, this work is considered an indispensable resource for professionals involved in performing or reviewing such research. Its integrated, multi-disciplinary approach, guided by science, ethics, and law, provides a comprehensive exploration of challenging issues. The book is designed to assist physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, and child advocates in navigating the complexities of pediatric research.
Page Count:
258
Publication Date:
1994-01-01
ISBN-10:
0195071034
ISBN-13:
9780195071030
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