Author Description

Cover -- Healthcare Activism: Markets, Morals, And The Collective Good -- Copyright -- Preface -- Note -- Contents -- List Of Figures And Tables -- Figures -- Tables -- List Of Contributors -- 1: Healthcare Activism, Marketization, And The Collective Good -- 1. Healthcare And Its Markets -- 2. Activists And Their Struggles For The Collective Good -- 3. Multiple Concerns-multiple Goods? -- 4. Hearing Multiple Voices -- 5. Marketized And Personalized-medical Science And The Collective Good -- 6. Defending The Collective Good In The Age Of Me Medicine -- 7. This Book's Contributions Acknowledgments -- Notes -- References -- 2: Preventing Exit, Eliciting Voice: Patient, Participant, And Public Involvement As Invited Activism In Precision Medicine And Genomics Initiatives -- Introduction -- 1. Sharing (genetic Data) In Contemporary Medicine: Benefits And Costs -- 1.1 Contemporary Medicine: Inclusive, Precise, Data-fed -- 1.2 Sharing Genetic Data: Individual And Social Benefits -- 1.3 The Costs Of Sharing Genetic Data -- 1.4 Called Upon For Sharing Data: Weighing Up Costs And Benefits -- 2. Exit, Opt-out, And Voice In Genomics Initiatives -- 2.1 Hirschman's Framework 2.2 Exit: Withdrawing Versus Opting Out -- 2.3 Voice: Political And Costly -- 2.4 Loyalty: Participating For The Sake Of Public Good? -- 3. Participatory Medicine -- 3.1 Switching From Exit To Voice -- 3.2 Participants As Partners -- 3.3 Voice From Within And Voice From Without: Patient, Participant, And Public Involvement -- 4. Invited Activism -- Conclusion -- Acknowledgments -- References -- 3: War On Diseases: Patient Organizations' Problematization And Exploration Of Market Issues -- Introduction -- 1. The Dynamics Of Patient Organizations And Their Epistemic Role 1.1 The Rise Of Experiential Knowledge In Early Groups Of Patients And Disabled People -- 1.2 The Mobilization Of Experiential Knowledge In The War On Diseases And The Emergence Of Evidence-based Activism -- 2. The Epistemic Work Undertaken By