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Knowledge Of The Genetic Basis Of Human Diseases Is Growing Rapidly, With Important Implications For Pre-conceptional, Prenatal, And Predictive Testing. While New Genetic Testing Offers Better Insight Into The Causes Of And Susceptibility For Heritable Diseases, Not All Inherited Diseases That Can Be Predicted On The Basis Of Genetic Information Can Be Treated Or Cured. Should We Test Everyone Who Wants To Know His Or Her Genetic Status, Even When There Are No Possibilities For Treatment? What Is The Role Of The Right-not-to-know? Do We Test Children For Adult Onset Disorders Because The Parents Just Have To Know Or Do We Respect The Children's Right To Choose When They Are Older? Do We Allow Commercial Companies To Offer Genetic Tests Directly To Consumers Without The Proper Oversight Regarding What The Test Results Will Mean? By Using A Creative Approach That Focuses On A Single Extended Family As A Case Example To Illustrate Each Chapter's Key Point, The Authors Elucidate Ethical Issues Arising In The Genetics Clinic And Laboratory Surrounding Many Timely Issues, Including: · Prenatal And Pre-implantation Genetic Diagnosis · Assisted Reproductive Technologies · Incidental Findings In Genetic Testing · Gene Patenting · Testing Children For Adult Onset Disorders · Direct To Consumer Testing Ethical Dilemmas In Genetic Counseling: Principles Through Case Scenarios Is Essential Reading For Anyone Interested In The Ethical Issues Surfacing In Common Genetics Practice. Written Exclusively By Genetic Counselors, It Makes A Significant Contribution To The Field Of Ethics In Genetics And Thus Will Appeal Not Only To Genetic Counselors But To Physicians, Nurses, And All Those Concerned With Bioethics And Social Science.
This book investigates the complex ethical landscape of modern clinical genetics, specifically addressing the tension between rapid technological advancement and the moral responsibilities of healthcare providers. Janice Berliner, a certified genetic counselor, utilizes her professional expertise to frame the clinical implications of genetic testing. The text argues that as our capacity to predict heritable diseases outpaces our ability to treat them, practitioners must navigate nuanced questions regarding patient autonomy, the right not to know, and the regulation of commercial genetic services.
What You Will Find
Scope Limits
Experts in the field of genetic counseling highlight this text as a practical resource for bridging the gap between theoretical bioethics and daily clinical practice. Readers frequently note that the use of a consistent family case study provides a clear, accessible framework for understanding complex ethical principles.
Page Count:
224
Publication Date:
2014-01-01
Publisher:
Oxford University Press
ISBN-10:
0190206632
ISBN-13:
9780190206635
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